Today Lyla was up to 25ml on her feeds. She has been doing great with the increase but today she spit up. Dr.V thinks it had something to do with the weening of methadone and the switch in antacids. So the weening (from .6ml to .5ml) will hold another day and the antacid dose will double along with adding back the previous one. There is talk again about getting Lyla a GJ tube which will allow feeds to go to her small intestine from the mic-key button which she already has. But there could be a tight fit internally. I really don't want her to have to get her food that way, but if its going to help with the wretching and keep her happy, then I guess that's what we will do.
Dsat and Brady when wretching
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