Feeling Like We Are Back at Square One

   Today's events have been interesting. Lyla's breathing has been very labored the last couple of days. Her tummy has really been pulling in while breathing and her oxygen levels have been low and get really low when she's mad (Desat). So after trying a cpap mask (see picture below) to try and help, Dr. W decided it was best to intubate (tube down her mouth). Thus the feeling of "back to square one". As much as it's suppose to help Lyla, it usually sets her back in other ways. It's just so frustrating to feel like she's not getting anywhere! And to top it off, her central line is leaking. She's already had this issue before with another central line in the opposite shoulder. So tonight they will watch the leakage and either rewire or find another site.

I'm going to try and figure out how to post videos to see the difference in breathing