LylaSteps: 2 Steps Back

Just when we think we are finally getting somewhere... Lyla gets sick... Again. A couple of weeks ago when she was sick it was mostly fevers, but this time she is really flemy and coughing a ton. The coughing is great because it's loosening up that stubborn stuff in her lungs, but she's coughing up all that mucus and she's having a hard time getting it all the way out (she can't spit) or swallowing it back down. Which is making her upset and miserable. We are able to get some of what comes out with the wall suction (like a vacuum) but not always helpful. You can hear her rattling when she breathes and she's having some nasal flaring. Her high flow has been moving all over the place the last couple of days. From 4L 30% to 6L to 6L 60% to 8L 50%, you get the idea.
As far as her feeds go, she was started late Friday afternoon at 5ml and was already at 10ml the next morning. However she spit up because she was upset and her gtube was not vented, so they turned the feeds off for a little and was back on at 10ml until this morning she had a huge blow out (poop) and she also spit up so she's back down to 5ml. So, not too great but I'm glad that she's at least getting something in her tummy.
The chest tube apparently came out on its own Friday morning. It was not what the Dr.s were planning since they wanted to be able to check the color of the output, but since her output of ccs were low they decided to keep it out. It was still leaking some however and it just pooled in the tape. See below.

And something else really fun, she had her Pulse ox wrapped around her hand/palm ( rotates between big toes and palm) and this time it left a red mark. It could be a burn from the light. It's suppose to rotate every 12 hours and I just don't know if that happened yesterday or not. Can't remember where it was before. She doesn't seem too bothered by it, but it still breaks my heart.