Wednesday, October 23, 2013

Steps

Lyla is truly taking Lyla-steps. She progresses at the rate she wants, but she seems to be on a slow and steady increase. Her biggest concern right now is growth. She's had a very hard time keeping down her formula, so we've switched her to 'neocate' formula, but so far there's no noticeable difference other than maybe a very slight improvement. With our visit this week to her Infectious Disease doctor, it was concluded she does not have a reoccurring fever syndrome (which would be terrible if she did), but weight concerns will leave her with increased susceptibility going into the winter months.

This week she's been to the ID doctor, had a blood draw, and scheduled a consultation with a surgeon regarding a potential for Fundoplication surgery (the same surgeon who installed her g-tube).




Monday, October 7, 2013

Transferring Toys

This month Lyla has been transferring toys from one hand to another and then back again! It's been so amazing to watch her do this intentionally. She is rolling all over the place and doing really well keeping her head up. When on her belly she likes to lean onto one elbow and throw the other one back behind her. She is still spitting up, and we hope this ends soon! Her weight is teetering and 12lbs.