Fluid draining into chest tube is back to being clear, so that's not on the radar anymore. But the fluid/mucus build up on the right side of her chest is still a concern for the Drs. They've started another treatment to loosen up the old mucus build up called IPV. In non technical terms, they hook up the machine to her breathing tube and it pump these quick puffs of air into her lungs for a couple of minutes. It looks really weird, and I didn't like seeing her chest move like that. But it's helping...
Yesterday the nurse noticed maybe some blood in her urine. The Dr confirmed today that Lyla has a urinary tract infection. Bleh... Since she's on the ECMO and her blood is real thin, removing the catheter and inserting a new one (what they would normally do with an infection) may cause internal bleeding. Removing the catheter and letting her pee on her own wont work because of the drugs she's on, her bladder will just expand and fill up and not release. So she is getting some antibiotics.
Weening from the ECMO probably will be Wednesday at the earliest.
Started getting breastmilk on Saturday. 3ml. Not much at all, but they've been slowly increasing her intake and she's up to 10ml/hr. so glad she's getting something, she's much happier with food in her belly.
Dr. mentioned something about lylas thyroid levels from one of the labs. Thyroid issues are a concern for Down Syndrome so this could be a life long concern for Lyla that she will be getting medicine for.
With the constant blood draws, Lyla had to get another blood transfusion today.
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