2 Weeks Later

  Because of the kylo (sp?, fats coming back in body the wrong way) Lyla has been taken off her feeds for about 6 weeks. I believe this happened on Saturday. They want to try and lessen the amount of fluid draining into her chest tube from the leak inside by stopping her feeds. This tear/leak should repair on its own, but knowing Lyla, it probably won't. I've become quite the pessimist;) She was also taken off the milrinone sunday? which is great, but she's been having trouble regulating her body temperature. This could be a result of her, once again, having the rhinovirus (confirmed today). Ugh. On top of recovering from heart surgery, she is now sick which kept her in the hospital 4 weeks last time. Hopefully with her fixed heart it won't be as bad....
  Yesterday was a busy day with Lyla getting a slightly larger ventilator tube and then later a bronchoscopy. Since her right lung was not clearing up with the IPV treatments, the Dr. went in with a scope to check it out. It was really interesting to see the inside of her lungs. She had a large audience between respiratory therapist, nurse, 3 Drs, a resident, and the pulmonary nurse all of which got excited when they found some mucus and grunted for the suction to get it all out. Dr. Wayment was able to get a couple chunks that have been sent off to the lab and suction a few other areas that were nice and gooey. Unfortunately the X-ray shows not much of an improvement but drs are hoping that things have been loosened up enough from the bronch and will really start moving out with the IPV treatments and her being proned (on her tummy).
   Today they moved the central line from her left leg to her shoulder. The line in her leg has been difficult the last couple of days to consistently draw blood from and apparently was leaking around the site. Her shoulder was the alternate spot from her neck. They also had to adjust her vent tube because it was too far in. So today has been pretty busy as well.
  Kidneys overall are looking much better so hopefully dialysis has been put off the radar.
  Catheter removed this weekend, peeing and pooping some into diaper.
  In and out of sedation between all the stuff they've been doing to her the last couple of days.