4 Weeks and Counting

                                      
   Our last 2 hospital stays Lyla was released at 4 weeks... We are going to surpass that record this time around. Her main issues right now are still the chest tube output and her lungs. Dr. Raff has scheduled a surgery (procedure) on Thursday to basically close the tear himself  IF her output does not decrease in the next couple of days. I'm hoping we are getting closer because yesterday her total output was 75ccs where last week she was around 200+ccs. Praying it continues on this path so we can avoid another surgery. Although it will not be even close to as scary as heart surgery.
  As far as her lungs, they are continuing with the same treatments since post extubation. I don't know generally how long it should take, but with Lyla it's always longer then it should be.
   She has not been seen by opthamology and probably won't be because the Dr today told me with the sedatives she is on it's making the Nystagmus (eyes constantly moving) worse. So optha will probably say they cannot make an accurate assessment. Ugh
  Her voice is still gone, although I can hear a little bit more each day. The ears, nose, and throat Dr. is suppose to come and take a look with a little camera that goes down her nose to look at her vocal cords. She will not be sedated for this, but I think they give her some numbing stuff?
   Lyla has had some good days and some rough days, but overall continuing to move in the right direction. Just slowly. I'm convinced that the albuterol she receives with her respiratory treatments is what is keeping her awake for long periods of time (hours). I know she needs it for her lungs and sooner that clears up the better. But it's really frustrating because she gets bugged so much during the day between the nurses, doctors, respiratory, ultrasound, X-ray, physical therapy, and whatever else specialist is called (ears nose throat) that she doesn't get good sleep. Some days she's got these horrible bags under her eyes and she just looks miserable.
   Morphine is down .03ml it's been about 3days at that rate
   High flow at 4L and 30% o2
  Ativan .7
   Lovanox shot 2x a day :(
   Lipids
   No milk still I think this is week 3 :(

Look how long her hair is!