Today marks one year since Lyla's open heart surgery. We were mostly comfortable going into the surgery since we already had this experience with Parker. We even read that she could be out within a week or two. We had learned a few things about Lyla from previous hospital stays, like that she likes to do things on her own time, so I was a little unbelieving that it would be a quick experience. The surgery itself went well. The surgeon was able to fix what he wanted to fix and she was sewn back up. But after only a few days, Lyla's heart wasn't doing too well and the
ECMO (life support to pump and oxygenate Lyla's blood for her) was hooked up. We continued on a road full of bumps and detours with respiratory issues and feeding issues included. And after 3 months, were finally able to go home.
We are so grateful to have that behind us. We felt like every time we got to take a step forward, we would then take two steps back. We finally feel like we are moving forward with Lyla's health, weight gain and development. It has been in true Lyla style, but we'll take it!
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