Steps

Lyla is truly taking Lyla-steps. She progresses at the rate she wants, but she seems to be on a slow and steady increase. Her biggest concern right now is growth. She's had a very hard time keeping down her formula, so we've switched her to 'neocate' formula, but so far there's no noticeable difference other than maybe a very slight improvement. With our visit this week to her Infectious Disease doctor, it was concluded she does not have a reoccurring fever syndrome (which would be terrible if she did), but weight concerns will leave her with increased susceptibility going into the winter months.

This week she's been to the ID doctor, had a blood draw, and scheduled a consultation with a surgeon regarding a potential for Fundoplication surgery (the same surgeon who installed her g-tube).