Day #15

Arriving to the hospital this morning, the nurse tells me that Lyla had one of her fits... But this one was pretty bad. She's turned purple before, but apparently this was worse. It is so scary to hear this about your little baby, and to know you can't do anything to help. And when the doctor starts talking about not wanting these fits to lead to a heart attack or cardiac arrest.... I don't know what to do or say. Basically her heart needs to be fixed, and if it were that easy, they would have done it by now. But there are all these factors and risks that need to be weighed. Doing it now with just being over (we think she is over it) the virus, her size, and her history makes the risks increase so much more. And she would likely need repair down the road. Doing the surgery later, if she can get bigger, would be less risky and have less chance of additional repair. But will she grow/gain enough weight in time?Will she even make it?
  We need the doctors and nurses to really know what is going on with Lyla. We need her to not have these fits, for her blood pressure to stay down and her heart and lungs to not be flooded with extra blood. We need her to gain weight and keep growing!
  We are so grateful for the prayers and support we have gotten from so many of our friends and family.