(Look! No tubes in my nose!)
Today they took Lyla off oxygen!!! So far she has been good keeping her O2 stats up where the Dr.'s want it, except for when she throws her fits... And she is well known with the nurses for her fits. Unfortunately when she has to pass gas or poop, she gets really upset and uncomfortable. And when she's upset her blood pressure rises and because of leaking in her one existing valve, blood flows uninhibited to her lungs and even back in the direction it came from which makes her even more uncomfortable. This usually results in the nurse giving her a drug called Ativan to "take the edge off". We don't want her to be uncomfortable either, but we also don't want her to become dependent on this drug...
She is still on continuous feeds.
Nurse today mentioned that she might go home with a stat monitor.
I got to snuggle her today:) the other two times I've gotten to hold her she had more wires and the central line in her leg so it was really hard to hold her. She didn't seem too comfortable and I wasn't either. And now that she is eating from her Gtube, it's still hard to hold her easily. It's been extremely difficult to not get to snuggle her. I hate seeing her just lying in the bed and I worry she won't like touch and snuggling (Parker had been this way too from his hospital stay).
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